Advocacy & Research Partnerships

We have engaged multiple advocacy and research groups across the DEE landscape in order to optimize the design of the PACIFIC study, increase study awareness in the community, and to enrich our understanding of the evolving DEE environment.

DEE-P Connections
SCN8A Alliance
LGS Foundation Lennox-Gastaut Syndrome
Dravet Syndrome Foundation
Families SCN2A Foundation
REN - Rare Epilepsy Network
Dup15q Alliance for 15Q 11.2-13.1 Multiplications
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